BioSHaRE is a collaborative project that has been developed by investigators of a large range of disciplines.
The collaborative activities of nine specialist work packages will enable the achievement of the project.
|1.||Coordination and management||UMCG||Ronald Stolk|
|2.||Data repository and epidemiological/ clinical harmonization||UMCG||Morris Swertz|
|3.||Epidemiology and Biostatistics for Biobank Harmonization||ULEIC||Paul Burton|
|4.||Bioinformatics standardization/ harmonization for optimised information management||ULEIC||Anthony Brookes|
|5.||Biospecimen harmonization/standardization||HMGU||Melanie Waldenberger|
|6.||Metabolomic and genetic risk factors for clustering of complex diseases||FIMM||Markus Perola|
|7.||Societal and environmental risk factors for complex diseases||NTNU||Kristian Hveem|
|8.||Strategic integration and coordination with major biobanking initiatives, partnerships
|9.||Implementation & Roll-out||FIMM||Samuli Ripatti|
BioSHaRE-EU has been designed to contain nine inter-related Work Packages (WPs) that pull together key areas of ‘phenotype harmonisation and standardisation’ (here implying phenotype in the broadest sense of the word, to include biomedical phenotype, environment, and socio-economic factors), bioinformatics tools, partnerships/dissemination, and implementation/roll-out – guided professionally on Ethical, Legal and Social Implications by a team of ELSI professionals and competent coordination/management. This arrangement is illustrated in the figure below.